Throughout my research, I was directed multiple times to Health Canada, the Canadian Neurological Sciences Federation and the Hospital for Sick Children. However, these websites provide brief information, but little support to families. I was unable to locate any Canadian family-based support organizations specific to DWS.
The Dandy-Walker Alliance, a US-based organization, is dedicated to funding research, supporting families and raising awareness of the syndrome. Through their website, contact information for further information, support and events can be found. The organization can provide, for international families, access to online chat groups specific to DWS. |